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Holly Jones's avatar

“There must be joy” will carry me through at least today. I am grateful.

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Michele Mandrioli's avatar

The story about the special needs teenagers reminded me of a very intelligent girl I became friends with in the fourth grade. We were both overweight and occasionally ridiculed because of it. She was the only Jewish person in our class, so I imagine she was teased about that as well, but she had a positive attitude and never complained about it. She played the flute and I played the violin, so we were in the orchestra together. In the 6th grade orchestra, she started to have trouble controlling her fingers on the flute keys and after a few months she couldn't play anymore. She was later diagnosed with some kind of progressive neuromuscular disease and her condition slowly deteriorated. She had a beautiful singing voice though, and I always sat next to her in the junior high glee club so I could follow her.

We had different interests and were in different classes for the next few years, but in 10th grade we were both in the same honors chemistry class where she was my lab partner. She couldn't really do any of the necessary manipulations, but I didn't mind because I enjoyed doing everything myself and was happy to help her. After a month so she decided to withdraw from the class. She couldn't control her hands enough to write and take notes, and had to do all her writing on an electric typewriter using a pencil between her teeth. At that point she had some difficulty walking, but she ended up graduating near the top of the class shortly after her 17th birthday and happened to go to the same college as I did, Clark University. She was a geography major and I was a chemistry major, so we didn't have any of the same classes and lived in different dorms, but it was nice to see her now and then. She ended up graduating magna cum laude a semester early at age 20 and got a PhD in Medical Anthropology at the University of Michigan and had postdoctoral positions at Northwestern and UCSF. She has had a notable professional career, including teaching Disability Studies at several universities. She is now a widow living in California. I offered to help her by giving her rides from and to the airport for our 50th high school reunion several years ago, but she decided not to attend. I keep in touch with her on Facebook, but haven't seen her for more than 50 years. She has always been an inspiration to me and I often think of times when I heard people ridicule her. I always told them that she had been my friend since 4th grade and tried to explain her disability to them.

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